Here is information on a benefit at Auntie Em's to help out a local resident. Please RSVP today if you can attend:
Dinner to Benefit Peter Hoffman-Kipp
I’m forwarding this message to you to help raise awareness and funds to help Peter Hoffman-Kipp who has been quietly coping with a disease process that is not well understood by the medical community and offers little to no treatment.
Peter and his family have been coming to Auntie Em's Kitchen since the day it opened and have been supporters of the restaurant to this day. Auntie Em's Kitchen is a neighborhood restaurant and we are so grateful to our friends and neighbors for the support and patronage they have shown us. Thus we would like in our small way to try and help Peter and his family.
The Hoffman-Kipp family have been going this alone while we have watched and wondered what we can do to help? Now we are offered the chance to do some real good, something tangible, and something that offers hope to restore Peter’s health and give him a fighting chance to win this battle.
We ask you to partake in a meal with Peter and his family on Friday May 13th from 6-9pm at Auntie Em’s Kitchen restaurant in Eagle Rock. Dinner/drinks suggested donation is $75.00 per person.
AUNTIE EM'S KITCHEN is located at 4616 Eagle Rock Blvd, CA 90041 / 323-255-0800
The Following is a synopsis of what is going on…
As some of you know, Peter now has a triple diagnosis – Lyme, ALS and CIDP. The addition of Lyme disease to the mix happened a few months back, and it led us to a wonderful doctor in Seattle. This doctor saw Peter in February, and is now leading us through a complex web of treatments. For example, Peter is receiving IVIG treatments with a home-health nurse twice a week, acupuncture every day, takes 25 antibiotics and supplements daily AND travels to Beverly Hills once or twice a week for specialty treatments. Did I mention that he should also be going to the Rose Bowl Aquatic Center 2-3 times a week along with a bit of qi-gong?
In terms of Peter's daily life, he books around in a wheelchair and usually stays pretty close to home. A caregiver comes each morning and evening. Peter is currently on short-term leave from his work until mid-May, in order to focus on these treatments. It has been 3 ½ years since the symptoms started, and Peter is tired but strong.
As you may know, treatment for neuromuscular disorders is rare, often alternative, and expensive. Insurance (even the great PPO we have) does not offer much coverage of treatments (except the IV treatment Peter receives at a tab of 10k a week). After 3 1/2 years of finding experts in the fields of neurology and neuromuscular disease, we finally found the doctor in Seattle who has agreed to treat Peter. He recommends a symphony of treatments, many of which we have begun.
Peter's doctor recommends stem cell treatment, which requires international travel and $25,000 per trip. Our goal is to raise the funds to make the first trip happen this summer. Peter may need 3-4 trips, if his body responds to the treatment.
Families helping families is what is going to get Peter through this and whatever you can do is much appreciated and more fundraisers between now and July will be held in order to get the family enough funds to make the trips for treatment. We'll keep you informed and you can also find us on TeamHoffman-Kipp.org
Thank you very much!